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Nearly one year after Hockey Hall of Famer Henrik Lundquvist detailed his battle with pericarditis through a campaign with Kiniksa Pharmaceuticals, the drugmaker announced another collaboration with a public figure focused on addressing the cardiac condition.

The biopharma company announced on Wednesday that it is collaborating with Grammy Award-winning country singer Carly Pearce on Wednesday to share her story about living with pericarditis in hopes to raise awareness of the issue. 

The condition is an autoinflammatory in nature — where the pericardical tissue in the sac around the heart becomes inflamed which can lead to shortness of breath, heart palpitations, chest pain, arrhythmia and more. These flare ups can occur more than once, resulting in recurrent pericarditis. 

Kiniksa first launched Life DisRPted in October with Lundqvist as a national effort to raise awareness of pericarditis and its risks. 

In joining the effort, Pearce shared that she struggled with symptoms for years before finally receiving a diagnosis after her fourth recurrent episode of pericarditis. 

“I was getting chest pains, and when you think chest pain, you think heart attack. When I would WebMD these symptoms, I would run to the ER,” Pearce shared. “It feels like you’re dying, which is scary.”

Pearce added that she was particularly scared due to her family history of cardiac complications. 

Her father experienced a heart attack when she was 19, worrying her that she may be going through something similar at such a young age. 

“I was living with the anxiety that we only get one heart and it can be scary to not know when these flares are going to happen — that can be detrimental,” she added. 

Pearce decided to share her story to raise more awareness about the condition, especially as she said she felt isolated throughout much of the experience.

One notable aspect of pericarditis and why it’s important to raise awareness of the condition is that medical experts still don’t know much about it. 

“We don’t know the underlying cause of the condition in about 85% of individuals who are diagnosed with pericarditis,” said Dr. Jonathan Salik, a board-certified cardiologist. 

He said there are many lifestyle interventions and medications out there that can help prevent the recurrence of the condition. 

“Overexertion — like heavy exercise — has a lot of impact on the heart and can lead to flare ups,” said Salik. 

Pearce said that as someone who exercises regularly and is constantly on tour, she adjusted her routine to incorporate more low-impact exercises to help her stay fit while reducing the number of flare ups. 

“I know people are worried about how they look and want to maintain a certain level of fitness, so it’s important to know there are ways they can do it,” she said. 

Salik also pointed out that the Kiniksa campaign directs people to resources to learn how to live with the condition on the LifeDisRPted website. 

“There is a document resource there that informs patients about the verbiage they can use with their doctor to describe their symptoms,” said Salik. 

This is particularly useful as diagnosis for the condition is tricky. Pearce said she struggled with it for years, and it was only when she started pushing for answers did she receive some. 

“You have to be your own advocate, always,” she said. “Don’t take ‘no’ for an answer. If you feel something is wrong and a doctor you go to isn’t aware of pericarditis, find one who is.”